Helping cancer and burn patients get access to the most effective treatment available
Oksana Oles
Diagnosis: Constitutional Diamond-Blackfan aplastic anemia
Oksana's health problems began almost immediately after she was born, but it was only after some time that a diagnosis was made and the only possible treatment recommended – a bone marrow transplant. This operation was performed in March 2024. Our donors also contributed to making this possible: Hilfeverein AdVita e.V. association covered the additional costs of €1,038.70.
Oksana is now feeling well.
Oksana's health problems began almost immediately after she was born, but it was only after some time that a diagnosis was made and the only possible treatment recommended – a bone marrow transplant. This operation was performed in March 2024. Our donors also contributed to making this possible: Hilfeverein AdVita e.V. association covered the additional costs of €1,038.70.
Oksana is now feeling well.
Oksana Oles
Oksana was born in 2021, without any complications. However, the next day, due to a decrease in hemoglobin in her blood, the girl was transferred to the neonatal pathology department. A month later, Oksana's condition worsened again: her temperature suddenly rose, she developed severe shortness of breath, and she was unable to drink due to weakness. The hospital found that her hemoglobin level had dropped to 29 g/l (normal is 120 g/l), and the child's condition was critical. Only a blood transfusion stabilized the situation, but after discharge, her hemoglobin began to drop again.
In the hematology department of the district children's hospital in Nizhnevartovsk, a bone marrow puncture was performed, which revealed bone marrow failure and erythroblast aplasia in Oksana. The final diagnosis of Diamond-Blackfan constitutional aplastic anemia was made at the D. Rogachev Research Institute in Moscow. Oksana needed blood transfusions every three weeks. At the D. Rogachev Research Institute, the family was advised that the only possible treatment was a bone marrow transplant.
The search for a bone marrow donor began, but no compatible donors were found in the Russian registry at that time.
As a result of constant blood transfusions (red blood cell suspension), the iron content in the child's body increased, reaching critical levels, which meant that Oksana needed a bone marrow transplant as soon as possible.
In November 2023, a donor was found in Stefan Morsh's international registry. The family managed to raise €23,000 for the search and activation of the donor on their own. To perform the operation, Oksana needed expensive drugs and delivery of donor material from Germany to Russia, which cost about 6 million roubles. The Children's Aid Foundation WorldVita helped with this amount.
In March 2024, a bone marrow transplant was performed. A month later, the final bill from the Morsh registry arrived, with additional costs for examinations increasing the bill by €1,038.70. It was technically impossible to transfer money from Russia to the international registry in Germany due to sanctions restrictions and strict conditions for bank transfers. In early March 2025, Hilfeverein AdVita e.V. paid the additional bill in the amount of €1,038.70.
Oksana is feeling fine now. She still has some immunity issues, but her blood counts have improved. According to her mother, Oksana has grown a little and is eating better.
In the hematology department of the district children's hospital in Nizhnevartovsk, a bone marrow puncture was performed, which revealed bone marrow failure and erythroblast aplasia in Oksana. The final diagnosis of Diamond-Blackfan constitutional aplastic anemia was made at the D. Rogachev Research Institute in Moscow. Oksana needed blood transfusions every three weeks. At the D. Rogachev Research Institute, the family was advised that the only possible treatment was a bone marrow transplant.
The search for a bone marrow donor began, but no compatible donors were found in the Russian registry at that time.
As a result of constant blood transfusions (red blood cell suspension), the iron content in the child's body increased, reaching critical levels, which meant that Oksana needed a bone marrow transplant as soon as possible.
In November 2023, a donor was found in Stefan Morsh's international registry. The family managed to raise €23,000 for the search and activation of the donor on their own. To perform the operation, Oksana needed expensive drugs and delivery of donor material from Germany to Russia, which cost about 6 million roubles. The Children's Aid Foundation WorldVita helped with this amount.
In March 2024, a bone marrow transplant was performed. A month later, the final bill from the Morsh registry arrived, with additional costs for examinations increasing the bill by €1,038.70. It was technically impossible to transfer money from Russia to the international registry in Germany due to sanctions restrictions and strict conditions for bank transfers. In early March 2025, Hilfeverein AdVita e.V. paid the additional bill in the amount of €1,038.70.
Oksana is feeling fine now. She still has some immunity issues, but her blood counts have improved. According to her mother, Oksana has grown a little and is eating better.
Nina Anisimova
Diagnosis: Aplastic idiopathic anemia
Nina has been fighting illness since summer 2020. She has had many blood transfusions since then, but there was no noticeable improvement until she underwent a bone marrow transplant in April 2023.
She is now feeling well and doing household chores, as well as spending time with her husband and two daughters.
The part of Nina's treatment cost covered by Hilfeverein AdVita e.V. amount to €1,315.11.
Nina has been fighting illness since summer 2020. She has had many blood transfusions since then, but there was no noticeable improvement until she underwent a bone marrow transplant in April 2023.
She is now feeling well and doing household chores, as well as spending time with her husband and two daughters.
The part of Nina's treatment cost covered by Hilfeverein AdVita e.V. amount to €1,315.11.
Nina Anisimova
Nina felt unwell in the summer of 2020 and consulted her local GP at the city hospital in Cheboksary (Chuvash Republic). She was diagnosed with low hemoglobin and prescribed iron supplements. The treatment was ineffective, and her hemoglobin continued to drop. In May 2021, she was diagnosed with idiopathic aplastic anemia (a disease in which the production of all important blood cells ceases).
Since then, Nina has been admitted to hospital once a month for blood transfusions and treatment with modern drugs. Unfortunately, the therapy did not have a noticeable positive effect, and after an examination in June 2022, a panel of doctors at the R. M. Gorbacheva Research Institute of Paediatric Oncology, Hematology and Transplantology decided that a bone marrow transplant was necessary. A compatible donor was found in the Russian registry, and the transplant was performed in April 2023. This was followed by a long recovery, a battle with cytomegalovirus and a skin reaction to the transplant, and observation at home.
At the time of the transplant, Nina's donor was abroad, and the procedure for his examination and cell harvesting was carried out at the National Scientific Oncology Centre of Kazakhstan. Due to difficulties in international financial transactions, it was not possible to make the payment through Russian banks. In December 2024, Hilfeverein AdVita paid a bill of €1,315.11 for a range of medical services related to the collection of hematopoietic stem cells from the donor's peripheral blood.
Nina is now feeling well and is busy with household chores, devoting most of her time to her two daughters and husband.
Since then, Nina has been admitted to hospital once a month for blood transfusions and treatment with modern drugs. Unfortunately, the therapy did not have a noticeable positive effect, and after an examination in June 2022, a panel of doctors at the R. M. Gorbacheva Research Institute of Paediatric Oncology, Hematology and Transplantology decided that a bone marrow transplant was necessary. A compatible donor was found in the Russian registry, and the transplant was performed in April 2023. This was followed by a long recovery, a battle with cytomegalovirus and a skin reaction to the transplant, and observation at home.
At the time of the transplant, Nina's donor was abroad, and the procedure for his examination and cell harvesting was carried out at the National Scientific Oncology Centre of Kazakhstan. Due to difficulties in international financial transactions, it was not possible to make the payment through Russian banks. In December 2024, Hilfeverein AdVita paid a bill of €1,315.11 for a range of medical services related to the collection of hematopoietic stem cells from the donor's peripheral blood.
Nina is now feeling well and is busy with household chores, devoting most of her time to her two daughters and husband.
Eva Saiko
Diagnosis: Nephroblastoma
Eva's story showed how much we can do together.
Eva's case was unusual: a tumor recurrence in her left kidney after removal of the right paired organ. The tumor was poorly located, and only the University Clinic of Tübingen (Germany) agreed to perform the operation. To perform the first surgery of 5 year old Eva, €40,000 was raised in just one day, thanks in large part to Katerina Gordeeva's appeal in her social media. The operation was conducted in June 2023. Katerina also helped with a second wave of fundraising in October 2023, when Eva needed additional surgery due to complications.
Thanks to our donors, the Hilfeverein AdVita e.V. association paid for Eva's treatment in the amount of €136,360.32. The little brave girl was saved.
And we are very happy to say that Eva is doing well now!
Eva Saiko
Eva fell ill in 2020. It started like a standard flu: fever, stomach ache. The paediatrician prescribed treatment, but it didn't help. After another visit to the clinic, the girl was sent for an ultrasound scan, where a large tumour was found on her right kidney.
Eva was diagnosed with nephroblastoma, a malignant kidney tumor. Almost immediately, a decision about a surgery was made. The case was unusual, so specialists from different clinics performed the operation, with colleagues from Germany providing consultation. The girl's entire right kidney was removed. It seemed that the worst was behind them. The family still needed to go for check-ups, but after almost two years they got used to it and did it more as a formality. Eva established a daily routine: wake up, comb her curly hair, go to a kindergarten, then to gymnastics class. Her mother's life also began to settle down.
However, in March 2022, during a routine examination, a recurrence was detected in her left kidney. As the doctors explained, recurrence of this type of tumor is very rare. Without surgery, Eva would be permanently tied to dialysis — an artificial device that keeps the kidneys functioning. First, chemotherapy was performed to reduce the tumor. After the course of treatment, the tumor shrunk to 1.2 cm and could now be removed, but it was located very unfortunately, close to the site where the vessels that feed the kidney are attached. This type of operation is not performed in Russia, but doctors in Germany agreed to take Eva, perform the operation and do everything possible to save the kidney.
In the summer of 2023, Eva underwent surgery at the University Hospital of Tübingen performed by Professor Fuchs, one of the best oncologists in Germany, but even for him, this case was extraordinary.
There were complications and setbacks, and a second operation was necessary in October 2023, but the tumor was removed and the kidney was saved. For both surgeries, it was possible to raise the money quickly, largely thanks to Katerina Gordeeva posting about Eva on her social media accounts.
In May 2024, we spoke with Yulia Saiko, Eva's mother, about how things are going now, a year after the second operation: "Eva and I are doing well, and Eva is feeling good.
In June, her year of supportive chemotherapy will end. And that will be the end of her treatment. The rest of the time, she is here, involved in the theatre club and preparing for school (she will not be going to school this year). There have been episodes, of course, with sores, but overall, everything is fine, her body is coping and recovering."
It's an amazing story: with your help, we managed to raise over €136,000. Thanks to you, little Eva can, as her mother says, ‘run, jump and play with her friends’.
And here is what Yulia Saiko asked us to say to all of you:
"Eva and I would like to express our immense gratitude to everyone who helped pay for our treatment! It is only thanks to such caring people that this trip and operation became a reality. Eva's kidney was saved and now she can enjoy a carefree childhood!
Eva was diagnosed with nephroblastoma, a malignant kidney tumor. Almost immediately, a decision about a surgery was made. The case was unusual, so specialists from different clinics performed the operation, with colleagues from Germany providing consultation. The girl's entire right kidney was removed. It seemed that the worst was behind them. The family still needed to go for check-ups, but after almost two years they got used to it and did it more as a formality. Eva established a daily routine: wake up, comb her curly hair, go to a kindergarten, then to gymnastics class. Her mother's life also began to settle down.
However, in March 2022, during a routine examination, a recurrence was detected in her left kidney. As the doctors explained, recurrence of this type of tumor is very rare. Without surgery, Eva would be permanently tied to dialysis — an artificial device that keeps the kidneys functioning. First, chemotherapy was performed to reduce the tumor. After the course of treatment, the tumor shrunk to 1.2 cm and could now be removed, but it was located very unfortunately, close to the site where the vessels that feed the kidney are attached. This type of operation is not performed in Russia, but doctors in Germany agreed to take Eva, perform the operation and do everything possible to save the kidney.
In the summer of 2023, Eva underwent surgery at the University Hospital of Tübingen performed by Professor Fuchs, one of the best oncologists in Germany, but even for him, this case was extraordinary.
There were complications and setbacks, and a second operation was necessary in October 2023, but the tumor was removed and the kidney was saved. For both surgeries, it was possible to raise the money quickly, largely thanks to Katerina Gordeeva posting about Eva on her social media accounts.
In May 2024, we spoke with Yulia Saiko, Eva's mother, about how things are going now, a year after the second operation: "Eva and I are doing well, and Eva is feeling good.
In June, her year of supportive chemotherapy will end. And that will be the end of her treatment. The rest of the time, she is here, involved in the theatre club and preparing for school (she will not be going to school this year). There have been episodes, of course, with sores, but overall, everything is fine, her body is coping and recovering."
It's an amazing story: with your help, we managed to raise over €136,000. Thanks to you, little Eva can, as her mother says, ‘run, jump and play with her friends’.
And here is what Yulia Saiko asked us to say to all of you:
"Eva and I would like to express our immense gratitude to everyone who helped pay for our treatment! It is only thanks to such caring people that this trip and operation became a reality. Eva's kidney was saved and now she can enjoy a carefree childhood!
We wish everyone that your kindness will be returned to you a hundredfold."
Irina Bogdanova
Diagnosis: Multiple myeloma
Irina lives in the town of Zarechny in the Penza region. She has a close-knit family – her husband, son, mother and cat. In the summer, she enjoys spending time at her dacha, where she likes to grow flowers and berries.
Since 2018, Irina has been fighting an illness that could only be effectively treated with a bone marrow transplant. This operation was performed in September 2022.
The Hilfeverein AdVita e.V. paid €17,257 to the Stefan Morsch International Registry to cover the full cost of finding and activating a bone marrow donor for Irina.
Irina lives in the town of Zarechny in the Penza region. She has a close-knit family – her husband, son, mother and cat. In the summer, she enjoys spending time at her dacha, where she likes to grow flowers and berries.
Since 2018, Irina has been fighting an illness that could only be effectively treated with a bone marrow transplant. This operation was performed in September 2022.
The Hilfeverein AdVita e.V. paid €17,257 to the Stefan Morsch International Registry to cover the full cost of finding and activating a bone marrow donor for Irina.
Irina Bogdanova
In February 2018, Irina began to experience chest pains. At first, she did not pay much attention to them, but the pain persisted. In November, Irina received a terrible diagnosis: multiple myeloma. This was followed by a long course of treatment - more than 10 courses of chemotherapy at the A.F. Tsyb Medical Radiological Research Centre in the Kaluga Region. In November 2019, she underwent an autologous bone marrow transplant at the N.I. Pirogov National Medical and Surgical Centre in Moscow.
After treatment, she went into remission. Irina returned to her normal life, went back to work, took her son to his first day of school, and spent time with her family.
But in May 2021, the disease returned, bringing with it more hospitals and more chemotherapy. The only way to achieve long-term remission was through a bone marrow transplant, which was to be performed at the Gorbacheva Research Institute of Pediatric Oncology, Hematology and Transplantology in St. Petersburg.
A fully compatible bone marrow donor for Irina was found in the International Registry in June 2022, and the transplant took place in St. Petersburg in early September. The Hilfeverein AdVita paid €17,257 to cover the full cost of finding and activating a bone marrow donor for Irina.
At the end of November 2022, Irina's health allowed doctors to release her under the supervision of local doctors at her place of residence in the Penza region. Before being discharged home, Irina felt well and celebrated her first victory—the doctors allowed her to eat an apple!
Scheduled examinations at the Gorbacheva Centre take place every six months.
After treatment, she went into remission. Irina returned to her normal life, went back to work, took her son to his first day of school, and spent time with her family.
But in May 2021, the disease returned, bringing with it more hospitals and more chemotherapy. The only way to achieve long-term remission was through a bone marrow transplant, which was to be performed at the Gorbacheva Research Institute of Pediatric Oncology, Hematology and Transplantology in St. Petersburg.
A fully compatible bone marrow donor for Irina was found in the International Registry in June 2022, and the transplant took place in St. Petersburg in early September. The Hilfeverein AdVita paid €17,257 to cover the full cost of finding and activating a bone marrow donor for Irina.
At the end of November 2022, Irina's health allowed doctors to release her under the supervision of local doctors at her place of residence in the Penza region. Before being discharged home, Irina felt well and celebrated her first victory—the doctors allowed her to eat an apple!
Scheduled examinations at the Gorbacheva Centre take place every six months.
Daniil Bushkovsky
Diagnosis: Primary immunodeficiency, chronic granulomatous disease
Daniil Bushkovsky lives with his mother in a small village in the Tomsk region. We learned about his story when he was 24 years old and doing well in school, playing music and reading a lot. Everything would have been fine, but unfortunately, Daniil has a rare and dangerous diagnosis: primary immunodeficiency, chronic granulomatous disease (CGD).
After a bone marrow transplant, Daniil is in remission and feeling well.
Daniil Bushkovsky lives with his mother in a small village in the Tomsk region. We learned about his story when he was 24 years old and doing well in school, playing music and reading a lot. Everything would have been fine, but unfortunately, Daniil has a rare and dangerous diagnosis: primary immunodeficiency, chronic granulomatous disease (CGD).
After a bone marrow transplant, Daniil is in remission and feeling well.
Daniil Bushkovsky
From early childhood, the boy suffered from purulent inflammation and constant stomach pains, and later his lungs were affected. The child was unsuccessfully treated for various suspected diseases, and only at the age of 17, at the D. Rogachev Centre in Moscow, was the correct diagnosis finally made. This allowed for the prescription of adequate therapy, but it only helps to cope with the consequences without eliminating the causes.
His disease is genetic in nature and causes primary immunodeficiency. The inability of phagocyte cells to destroy the infection causes prolonged illness and can lead to death from pneumonia, abscesses, sepsis, and fungal infections. Bone marrow transplantation is an effective and sometimes the only way to combat the disease, allowing for a great change in the patient's life expectancy and quality of life.
In 2019, a bone marrow transplant operation was performed. After various complications, stable remission was achieved.
His disease is genetic in nature and causes primary immunodeficiency. The inability of phagocyte cells to destroy the infection causes prolonged illness and can lead to death from pneumonia, abscesses, sepsis, and fungal infections. Bone marrow transplantation is an effective and sometimes the only way to combat the disease, allowing for a great change in the patient's life expectancy and quality of life.
In 2019, a bone marrow transplant operation was performed. After various complications, stable remission was achieved.
18.10.2021
The results of bone marrow transplantation are stable. Danya feels well. Hilfeverein AdVita continues to raise funds for the treatment of patients of the Raisa Gorbacheva Cancer Center.
14.07.2020
Daniil is doing great. Not that long ago, he took a blood test in Tomsk, his blood counts are normal. Daniil has also developed skin GVHD and is still taking Tacrolimus. The first stage of vaccination is completed and is to be continued in January. His medical exam is planned in a year.
22.04.2020
Daniil's blood counts are normal, although his liver counts are increased. Tacrolimus doses had to be increased to cope with his liver GVHD. Daniil has not been able to gain weight yet. In general he is well getting vaccinated for the first time on March 18, after which he was feverish for a few days.
14.02.2020
In early February, Daniel came to St. Petersburg for a medical examination. His Hemoglobin levels are low, but other blood counts are normal. The blood test result for engraftment of the donor bone marrow is not ready yet. His lungs tests seem to be normal. He continues low dosage Tacrolimus treatment and was prescribed iron supplements. Soon Daniil will go home, his next medical exam will take place in six months. Daniel feels OK and is making plans to continue his studies.
18.12.2019
Daniil is well and is now back home. His hemoglobin levels are a bit low, though other blood counts are close to normal. Daniel continues to take Tacrolimus. A medical appointment is scheduled in St. Petersburg for February 2020. Daniel goes for walks, spends time at home while also preparing documents to reapply for disability benefits.
29.11.2019
The blood test results show that complete engraftment of the donor bone marrow remains. Blood counts are close to normal and there are no viruses detected. Skin GHVD does not bother Daniil, although he keeps taking Tacrolimus. Daniel is soon to be released and on December 6th he returns home. Daniel is well, goes for walks and is in physical therapy. He has managed to gain some weight.
12.11.2019
Daniel's blood test showed complete engraftment of the donor bone marrow. Blood counts are close to normal. The young man was transferred to the day hospital of Raisa Gorbacheva Institute of Pediatric Oncology. He recently developed a skin rash and is to have a dermatologist consultation. Daniil keeps taking Tacrolimus. Daniil feels rather well and is more energetic. The young man goes for walks and spends time on his computer.
22.10.2019
In early October, Daniil had a fever and was later diagnosed with a catheter infection and cervical lymph node caused by Pseudomonas aeruginosa. Daniil was transferred to an intensive care unit where they surgically removed the abscess. Mid-October, after the necessary treatment Daniil returned to the transplantation unit. The blood test taken 30 days after the surgery showed complete engraftment of the donor bone marrow. His blood counts are close to normal now, so he will be transferred to a day hospital soon.
Daniil is well, although a bit weak. He is allowed for walks and is doing physical therapy. In his free time, he learns card tricks.
01.10.2019
On September 18th, Daniil had a bone marrow transplant. After the surgery, he kept experiencing seizures and had to take anti-seizure medication. Three days after the transplant, he was taken to a transplant unit. His blood counts are low, for which is getting blood transfusion. Unfortunately, Daniil has also developed mucositis.
During the preparation period, Daniil was successfully treated for furunculosis, but has been suffering from a high fever in the last 5 days. Doctors believe that the fever might have been caused by an infection. At the moment, Danill is very weak and is not feeling well. He might need further treatment.
The search for a bone marrow transplant donor and stem cell matching were fully covered by our donors. We are grateful for the generous donations!
11.09.2019
On September 9th, Daniil was admitted to the intensive care unit of Raisa Gorbacheva Institute of Pediatric Oncology due to a possible acute reaction to the upcoming pre-transplantation chemotherapy. His transplantation is scheduled for September 18th.
Lately, Daniil has been suffering from furunculosis and an eye inflammation and was diagnosed with staphylococcus. From time to time, Daniil is experiencing high fever, although his general condition is stable and his appetite is increasing.
23.08.2019
Daniil is undergoing a medical examination in Tomsk prior to the surgery. His blood values are stable, ESR is high. Daniil is still suffering from furunculosis and decreased appetite.
Tomorrow Daniil is returning home to go to St. Petersburg at the end of August for medical advice. Daniil's not feeling well because of
a high fever and furunculosis.
The results of bone marrow transplantation are stable. Danya feels well. Hilfeverein AdVita continues to raise funds for the treatment of patients of the Raisa Gorbacheva Cancer Center.
14.07.2020
Daniil is doing great. Not that long ago, he took a blood test in Tomsk, his blood counts are normal. Daniil has also developed skin GVHD and is still taking Tacrolimus. The first stage of vaccination is completed and is to be continued in January. His medical exam is planned in a year.
22.04.2020
Daniil's blood counts are normal, although his liver counts are increased. Tacrolimus doses had to be increased to cope with his liver GVHD. Daniil has not been able to gain weight yet. In general he is well getting vaccinated for the first time on March 18, after which he was feverish for a few days.
14.02.2020
In early February, Daniel came to St. Petersburg for a medical examination. His Hemoglobin levels are low, but other blood counts are normal. The blood test result for engraftment of the donor bone marrow is not ready yet. His lungs tests seem to be normal. He continues low dosage Tacrolimus treatment and was prescribed iron supplements. Soon Daniil will go home, his next medical exam will take place in six months. Daniel feels OK and is making plans to continue his studies.
18.12.2019
Daniil is well and is now back home. His hemoglobin levels are a bit low, though other blood counts are close to normal. Daniel continues to take Tacrolimus. A medical appointment is scheduled in St. Petersburg for February 2020. Daniel goes for walks, spends time at home while also preparing documents to reapply for disability benefits.
29.11.2019
The blood test results show that complete engraftment of the donor bone marrow remains. Blood counts are close to normal and there are no viruses detected. Skin GHVD does not bother Daniil, although he keeps taking Tacrolimus. Daniel is soon to be released and on December 6th he returns home. Daniel is well, goes for walks and is in physical therapy. He has managed to gain some weight.
12.11.2019
Daniel's blood test showed complete engraftment of the donor bone marrow. Blood counts are close to normal. The young man was transferred to the day hospital of Raisa Gorbacheva Institute of Pediatric Oncology. He recently developed a skin rash and is to have a dermatologist consultation. Daniil keeps taking Tacrolimus. Daniil feels rather well and is more energetic. The young man goes for walks and spends time on his computer.
22.10.2019
In early October, Daniil had a fever and was later diagnosed with a catheter infection and cervical lymph node caused by Pseudomonas aeruginosa. Daniil was transferred to an intensive care unit where they surgically removed the abscess. Mid-October, after the necessary treatment Daniil returned to the transplantation unit. The blood test taken 30 days after the surgery showed complete engraftment of the donor bone marrow. His blood counts are close to normal now, so he will be transferred to a day hospital soon.
Daniil is well, although a bit weak. He is allowed for walks and is doing physical therapy. In his free time, he learns card tricks.
01.10.2019
On September 18th, Daniil had a bone marrow transplant. After the surgery, he kept experiencing seizures and had to take anti-seizure medication. Three days after the transplant, he was taken to a transplant unit. His blood counts are low, for which is getting blood transfusion. Unfortunately, Daniil has also developed mucositis.
During the preparation period, Daniil was successfully treated for furunculosis, but has been suffering from a high fever in the last 5 days. Doctors believe that the fever might have been caused by an infection. At the moment, Danill is very weak and is not feeling well. He might need further treatment.
The search for a bone marrow transplant donor and stem cell matching were fully covered by our donors. We are grateful for the generous donations!
11.09.2019
On September 9th, Daniil was admitted to the intensive care unit of Raisa Gorbacheva Institute of Pediatric Oncology due to a possible acute reaction to the upcoming pre-transplantation chemotherapy. His transplantation is scheduled for September 18th.
Lately, Daniil has been suffering from furunculosis and an eye inflammation and was diagnosed with staphylococcus. From time to time, Daniil is experiencing high fever, although his general condition is stable and his appetite is increasing.
23.08.2019
Daniil is undergoing a medical examination in Tomsk prior to the surgery. His blood values are stable, ESR is high. Daniil is still suffering from furunculosis and decreased appetite.
Tomorrow Daniil is returning home to go to St. Petersburg at the end of August for medical advice. Daniil's not feeling well because of
a high fever and furunculosis.
Lilia Znayeva
Diagnosis: Acute lymphoblastic leukemia
Lilia Znaeva lives in Irkutsk. After graduating from university, she worked for the Federal Bailiff Service and as a lawyer. Lilia is married and has two sons.
She contacted our partner organization in St. Petersburg when she was 33 years old.
In 2019, Lilia underwent a bone marrow transplant, which led to remission.
Lilia Znaeva lives in Irkutsk. After graduating from university, she worked for the Federal Bailiff Service and as a lawyer. Lilia is married and has two sons.
She contacted our partner organization in St. Petersburg when she was 33 years old.
In 2019, Lilia underwent a bone marrow transplant, which led to remission.
Lilia Znayeva
Before the illness, Lilia had an interesting and active life — vacations on the Baikal Lake, hiking and kayaking. Lilia made big plans, but the diagnosis of acute lymphoblastic leukemia, made in the Summer of 2017, changed her whole life: eight months in the hematology department, six courses of chemotherapy, then three supporting courses. And in June 2018 — a new relapse and endless exhausting treatment. It became clear that the only way out was a bone marrow transplantation.
In July 2019 a bone marrow transplantation was successfully performed. Lilia is feeling well and she is busy raising her two children. Hilfeverein AdVita goes on with raising funds for the patients of the Raissa Gorbacheva Cancer Center.
In July 2019 a bone marrow transplantation was successfully performed. Lilia is feeling well and she is busy raising her two children. Hilfeverein AdVita goes on with raising funds for the patients of the Raissa Gorbacheva Cancer Center.
18.10.2021
The remission after the bone marrow transplantation is keeping. Julya is feeling well. Hilfeverein AdVita continues to raise funds for the patients of Raissa Gorbacheva Cancer Center.
29.04.2020
At the end of February, Lilya came to St. Petersburg for a medical exam. Her blood counts are normal. Remission and engraftment of the donor bone marrow remain, which was confirmed by the puncture taken in early March and on April 9 in Irkutsk. Lilia isolated herself in the village with children, keeping herself busy. She shows her children different outdoor games that she used to play as a child herself.
31.01.2020
On November 24, Lilia went to St. Petersburg for a check-up: remission remains and her blood counts are stable. Sirolimus treatment is over and Liliya was allowed to go home until February. She is well, busy with her apartment renovations and taking care of the children.
22.11.2019
November 19th, results of Lilya's biopsy show that remission remains. Her platelet count is low, while other blood counts are close to normal. So far, the state failed to provide Sirolimus for Liliya. November 24th, she will go to St. Petersburg for a check-up.
Liliya is well, she plays with her children and reads books to them. Not long ago, she was re-registered as disabled (first-degree).
24.10.19
Lilya's blood counts are increasing. She is taking Sirolimus, Imatinib and other medications. Her follow-up examination is scheduled for November 25th. Meanwhile, Lilya has to reapply for disability benefits. She is feeling better and at the moment at home with her children.
03.10.19
In the middle of September, Lilya had a bone marrow biopsy that showed full engraftment of the bone marrow transplant. Lilya's blood blast count is within the norm and although her blood counts are lower than usual, there is no need in blood transfusion. Lilya was discharged from the hospital, the follow-up checkup is scheduled for early December. Lilya is well and is already back home, happily reunited with her kids.
09.09.2019
Marrow biopsy in August has shown successful transplant bone marrow engraftment. CMV disease and herpes are no longer an issue, but Lilya is still struggling with low blood counts and thus requires a blood transfusion. Lilya is also through with her Valcyte treatment. Lilya is doing well and is allowed for walks, but can't wait to finally go home.
The remission after the bone marrow transplantation is keeping. Julya is feeling well. Hilfeverein AdVita continues to raise funds for the patients of Raissa Gorbacheva Cancer Center.
29.04.2020
At the end of February, Lilya came to St. Petersburg for a medical exam. Her blood counts are normal. Remission and engraftment of the donor bone marrow remain, which was confirmed by the puncture taken in early March and on April 9 in Irkutsk. Lilia isolated herself in the village with children, keeping herself busy. She shows her children different outdoor games that she used to play as a child herself.
31.01.2020
On November 24, Lilia went to St. Petersburg for a check-up: remission remains and her blood counts are stable. Sirolimus treatment is over and Liliya was allowed to go home until February. She is well, busy with her apartment renovations and taking care of the children.
22.11.2019
November 19th, results of Lilya's biopsy show that remission remains. Her platelet count is low, while other blood counts are close to normal. So far, the state failed to provide Sirolimus for Liliya. November 24th, she will go to St. Petersburg for a check-up.
Liliya is well, she plays with her children and reads books to them. Not long ago, she was re-registered as disabled (first-degree).
24.10.19
Lilya's blood counts are increasing. She is taking Sirolimus, Imatinib and other medications. Her follow-up examination is scheduled for November 25th. Meanwhile, Lilya has to reapply for disability benefits. She is feeling better and at the moment at home with her children.
03.10.19
In the middle of September, Lilya had a bone marrow biopsy that showed full engraftment of the bone marrow transplant. Lilya's blood blast count is within the norm and although her blood counts are lower than usual, there is no need in blood transfusion. Lilya was discharged from the hospital, the follow-up checkup is scheduled for early December. Lilya is well and is already back home, happily reunited with her kids.
09.09.2019
Marrow biopsy in August has shown successful transplant bone marrow engraftment. CMV disease and herpes are no longer an issue, but Lilya is still struggling with low blood counts and thus requires a blood transfusion. Lilya is also through with her Valcyte treatment. Lilya is doing well and is allowed for walks, but can't wait to finally go home.
Julia Mysova
Diagnosis: acute monoblastic leukemia
Julia Mysova lives in the city of Satka in the Chelyabinsk Region (Urals). Julia is married and has three children. In March 2017, she was diagnosed with acute monoblastic leukemia when she was 27 years old and pregnant with her third child.
In 2020, Julia was diagnosed with a relapse. But she continues to fight the disease and is awaiting a decision on a bone marrow transplant. We will inform you of the results as soon as we receive them from our partner organization in St. Petersburg.
Julia Mysova lives in the city of Satka in the Chelyabinsk Region (Urals). Julia is married and has three children. In March 2017, she was diagnosed with acute monoblastic leukemia when she was 27 years old and pregnant with her third child.
In 2020, Julia was diagnosed with a relapse. But she continues to fight the disease and is awaiting a decision on a bone marrow transplant. We will inform you of the results as soon as we receive them from our partner organization in St. Petersburg.
Julia's Story
Julia underwent two courses of chemotherapy during her pregnancy. Fortunately, the baby was born healthy. After that, Julia underwent several more courses of chemotherapy. For now, it has been decided not to perform a bone marrow transplant due to poor indicators.
Treatment is currently ongoing, and Julia is awaiting a decision on a bone marrow transplant.
Julia's dream is to live a long life with her loved ones and raise her children. In her appeal, Julia writes: ‘Any help you can give is my chance for recovery. Thank you to everyone who has shown concern!’
Treatment is currently ongoing, and Julia is awaiting a decision on a bone marrow transplant.
Julia's dream is to live a long life with her loved ones and raise her children. In her appeal, Julia writes: ‘Any help you can give is my chance for recovery. Thank you to everyone who has shown concern!’
18.10.21
The treatment is going on. We are waiting for the decision regarding bone marrow transplantation. We'll keep you posted on the results as soon as we get them from our partner organisation in St. Petersburg: https://advita.ru/podopechnye/YMys1
26.03.2020
Julia's tests showed relapse. The second course of chemotherapy is now completed, as remission was not achieved after the first course. A puncture is scheduled for next week. Based on the results, the future treatment will be updated.
02.10.2019
In October, Yulia is going to Chelyabinsk for a medical follow-up checkup. Her blood counts are slightly lower than usual. For now, it was decided against a bone marrow transplant given some of physiological factors and the fact that Yulia has been in remission for quite some time. Yullia had an URTI for two weeks and was getting treatment for that. She is feeling better, but feels quite weak and experiences some sleeping difficulties. She is busy with household chores and takes care of the kids.
20.08.2019
Julia feels quite well, she is only bothered by general weakness. Her blood counts are a little low. The control test will take place in Chelyabinsk at the beginning of October. Julia is now at home and will soon go to the village with her children.
The treatment is going on. We are waiting for the decision regarding bone marrow transplantation. We'll keep you posted on the results as soon as we get them from our partner organisation in St. Petersburg: https://advita.ru/podopechnye/YMys1
26.03.2020
Julia's tests showed relapse. The second course of chemotherapy is now completed, as remission was not achieved after the first course. A puncture is scheduled for next week. Based on the results, the future treatment will be updated.
02.10.2019
In October, Yulia is going to Chelyabinsk for a medical follow-up checkup. Her blood counts are slightly lower than usual. For now, it was decided against a bone marrow transplant given some of physiological factors and the fact that Yulia has been in remission for quite some time. Yullia had an URTI for two weeks and was getting treatment for that. She is feeling better, but feels quite weak and experiences some sleeping difficulties. She is busy with household chores and takes care of the kids.
20.08.2019
Julia feels quite well, she is only bothered by general weakness. Her blood counts are a little low. The control test will take place in Chelyabinsk at the beginning of October. Julia is now at home and will soon go to the village with her children.