Helping cancer and burn patients get access to the most effective treatment available
Oksana Oles
Diagnosis: Constitutional Diamond-Blackfan aplastic anemia
Oksana was born on June 29, 2021, without complications. However, the next day, due to a decrease in hemoglobin in the blood, the girl was transferred to the neonatal pathology department. A month later, Oksana's condition worsened again: her temperature suddenly rose, severe shortness of breath developed, the girl could not drink due to weakness. At the hospital, they found out that the hemoglobin level had dropped to 29 g / l (with a norm of 120 g / l), the child's condition was critical. Only a blood transfusion helped stabilize the situation, but after discharge, hemoglobin began to decrease again. In the hematology department of the Nizhnevartovsk District Children's Hospital, a bone marrow puncture was performed, as a result, Oksana was diagnosed with bone marrow failure, erythropoiesis. The final diagnosis of "Constitutional aplastic Diamond-Blackfan anemia" was established at the D. Rogachev Research Institute in Moscow. Oksana needed blood transfusions every 3 weeks. At the D. Rogachev National Medical Research Center for Pediatric Hematology, Oncology and Immunology, the family was recommended the only possible treatment method - bone marrow transplantation, for which it was necessary to contact the R.M. Gorbacheva Research Institute in St. Petersburg. The search for a bone marrow donor began; at that time, compatible donors were not found in the Russian registry.
As a result of constant blood transfusions (erythrocyte suspension), the child's iron content increased, its indicators reached critical values, and therefore Oksana needed to undergo a bone marrow transplant as soon as possible. In November 2023, a donor was found in the St. Morsch International Registry in Germany. The family managed to raise 23,000 euros on their own to search for and activate the donor. To perform the BMT, Oksana needed expensive foreign drugs and delivery of donor material from Germany to Russia, which amounted to about 6 million rubles; the WorldVita Children's Aid Foundation helped with this amount. In March 2024, a bone marrow cell transplant was performed. A month later, the final bill from the Morsch registry arrived; due to additional costs for examinations, the bill increased by 1038.70 euros. It is technically impossible to transfer money from Russia to the international registry in Germany due to sanctions and strict conditions for transfers in banks. In early March 2025, Hilfeverein AdVita paid an additional bill for 1038.70 euros. Oksana now feels fine. There is still a problem with her immunity, but her blood counts have improved. According to her mother, Oksana has grown a little and started eating better. At the end of April, the family will go to St. Petersburg for a check-up.
Oksana was born on June 29, 2021, without complications. However, the next day, due to a decrease in hemoglobin in the blood, the girl was transferred to the neonatal pathology department. A month later, Oksana's condition worsened again: her temperature suddenly rose, severe shortness of breath developed, the girl could not drink due to weakness. At the hospital, they found out that the hemoglobin level had dropped to 29 g / l (with a norm of 120 g / l), the child's condition was critical. Only a blood transfusion helped stabilize the situation, but after discharge, hemoglobin began to decrease again. In the hematology department of the Nizhnevartovsk District Children's Hospital, a bone marrow puncture was performed, as a result, Oksana was diagnosed with bone marrow failure, erythropoiesis. The final diagnosis of "Constitutional aplastic Diamond-Blackfan anemia" was established at the D. Rogachev Research Institute in Moscow. Oksana needed blood transfusions every 3 weeks. At the D. Rogachev National Medical Research Center for Pediatric Hematology, Oncology and Immunology, the family was recommended the only possible treatment method - bone marrow transplantation, for which it was necessary to contact the R.M. Gorbacheva Research Institute in St. Petersburg. The search for a bone marrow donor began; at that time, compatible donors were not found in the Russian registry.
As a result of constant blood transfusions (erythrocyte suspension), the child's iron content increased, its indicators reached critical values, and therefore Oksana needed to undergo a bone marrow transplant as soon as possible. In November 2023, a donor was found in the St. Morsch International Registry in Germany. The family managed to raise 23,000 euros on their own to search for and activate the donor. To perform the BMT, Oksana needed expensive foreign drugs and delivery of donor material from Germany to Russia, which amounted to about 6 million rubles; the WorldVita Children's Aid Foundation helped with this amount. In March 2024, a bone marrow cell transplant was performed. A month later, the final bill from the Morsch registry arrived; due to additional costs for examinations, the bill increased by 1038.70 euros. It is technically impossible to transfer money from Russia to the international registry in Germany due to sanctions and strict conditions for transfers in banks. In early March 2025, Hilfeverein AdVita paid an additional bill for 1038.70 euros. Oksana now feels fine. There is still a problem with her immunity, but her blood counts have improved. According to her mother, Oksana has grown a little and started eating better. At the end of April, the family will go to St. Petersburg for a check-up.
Nina Anisimova
Diagnosis: Aplastic idiopathic anemia
Nina felt worse in the summer of 2020, went to see a local therapist at the city hospital in Cheboksary (Chuvash Republic). She was diagnosed with low hemoglobin, and was prescribed iron supplements. The therapy did not give results, hemoglobin continued to decrease. In May 2021, she was diagnosed with "idiopathic aplastic anemia" (a disease in which the reproduction of all important blood cells stops).
Since then, once a month, Nina was admitted to the hospital for a blood transfusion and received treatment with modern drugs. But, unfortunately, the therapy did not give a noticeable positive effect, and after an examination in June 2022, a doctors’ comission at the Raisa Gorbacheva Research Institute of Pediatric Oncology, Hematology and Transplantology decided that a bone marrow transplant was necessary. A compatible donor was found in the Russian registry and the transplant was performed in April 2023. Then there was a long recovery, a fight against cytomegalovirus and a skin reaction to the transplant, and a follow up at the place of residence.
In December 2024, Hilfeverein AdVita paid the bill for 1,315.11 euros for a set of medical services for the procurement of hematopoietic stem cells of peripheral blood. Now Nina feels well, does housework, and devotes most of her time to her two daughters and husband. Her next examination in St. Petersburg is scheduled for May 2025.
Nina felt worse in the summer of 2020, went to see a local therapist at the city hospital in Cheboksary (Chuvash Republic). She was diagnosed with low hemoglobin, and was prescribed iron supplements. The therapy did not give results, hemoglobin continued to decrease. In May 2021, she was diagnosed with "idiopathic aplastic anemia" (a disease in which the reproduction of all important blood cells stops).
Since then, once a month, Nina was admitted to the hospital for a blood transfusion and received treatment with modern drugs. But, unfortunately, the therapy did not give a noticeable positive effect, and after an examination in June 2022, a doctors’ comission at the Raisa Gorbacheva Research Institute of Pediatric Oncology, Hematology and Transplantology decided that a bone marrow transplant was necessary. A compatible donor was found in the Russian registry and the transplant was performed in April 2023. Then there was a long recovery, a fight against cytomegalovirus and a skin reaction to the transplant, and a follow up at the place of residence.
In December 2024, Hilfeverein AdVita paid the bill for 1,315.11 euros for a set of medical services for the procurement of hematopoietic stem cells of peripheral blood. Now Nina feels well, does housework, and devotes most of her time to her two daughters and husband. Her next examination in St. Petersburg is scheduled for May 2025.
Eva Saiko
Saint Petersburg
Diagnosis: Nephroblastoma
A year has passed since Katerina Gordeeva turned to her subscribers on social media for help: The call was to urgently raise money for a surgical operation for Eva Saiko in Tübingen, Germany. And then many people responded to this call, and within 24 hours the missing amount was collected.
By that time, this was already the second fundraiser: Hifeverein AdVita paid for the first complex organ-preserving operation for Eva in May 2023, but life-threatening complications arose, and a second operation was immediately required, which meant an emergency fundraiser. We at Hilfeverein AdVita were in constant contact with the hospital in Tübingen and monitored the situation. To our common joy, the second operation was successful—Eva was saved.
Recently we talked with Yulia Saiko, Eva’s mother, about how things are going now:
“Everything is fine with us, and Eva feels good. The yearly supporting chemotherapy ends in June. And that’s it, this is where the treatment ends. The rest of the time she’s here in the theater group and preparing for school (she won’t go to school yet this year). There were episodes, of course, with health concerns, but, in general, everything is fine, the body is coping and recovering.”
This is an amazing story: with your help, we managed to raise more than 136,000 euros. Thanks to you, little Eva can, as her mother says, “run, jump and play with friends.”
And this is what Yulia Saiko asked us to tell you:
“Eva and I want to express our deep gratitude to everyone who participated in helping pay for our treatment! It was only thanks to such caring people that this trip and operation became a reality. Eva's kidney was saved and now she can enjoy a carefree childhood!
We wish everyone that your kindness will be returned to you a hundredfold.”
01.07.2024
Irina Bogdanova
Diagnosis: Multiple myeloma
Irina is 39 years old, lives in the city of Zarechny, Penza region. She has a close-knit family - husband, son, mother and cat. In the summer, she likes to spend time in the country, she likes to grow flowers and berries.
In February 2018, Irina began to worry about chest pain, at first she did not pay much attention, but the pain did not go away. In November, Irina learned the terrible diagnosis - "multiple myeloma". Then a long treatment began - more than 10 courses of chemotherapy at the A.F. Tsyb Medical Radiological Research Center in the Kaluga Region, and in November 2019 - an autologous bone marrow transplant at the N.I. Pirogov Medical Center in Moscow. After the treatment, remission occurred. Irina returned to her usual life, went to work, saw her son off to first grade, and was with her family. But in May 2021, the disease returned, more hospitals, more chemotherapy. It was only possible to remain in long-term remission with the help of a bone marrow transplant, which was ready to be performed at the Gorbacheva Research Institute of Haematology and Transplantolgy in St. Petersburg.
A fully compatible bone marrow donor for Irina was found in the International Registry in June 2022. The transplantation surgery took place in St. Petersburg in early September. Hilfeverein AdVita transferred 17,257 euros to the International Morsch Registry to fully cover the search and activation of a bone marrow donor for Irina.
At the end of November 2022, Irina's health allowed doctors to discharge her from the hospital to her place of residence, in the Penza Region under medical supervision. Before being discharged home, Irina felt well, celebrated her first victory - the doctors allowed her to eat an apple!
Scheduled examinations at the Gorbacheva medical center take place every six months.
Irina is 39 years old, lives in the city of Zarechny, Penza region. She has a close-knit family - husband, son, mother and cat. In the summer, she likes to spend time in the country, she likes to grow flowers and berries.
In February 2018, Irina began to worry about chest pain, at first she did not pay much attention, but the pain did not go away. In November, Irina learned the terrible diagnosis - "multiple myeloma". Then a long treatment began - more than 10 courses of chemotherapy at the A.F. Tsyb Medical Radiological Research Center in the Kaluga Region, and in November 2019 - an autologous bone marrow transplant at the N.I. Pirogov Medical Center in Moscow. After the treatment, remission occurred. Irina returned to her usual life, went to work, saw her son off to first grade, and was with her family. But in May 2021, the disease returned, more hospitals, more chemotherapy. It was only possible to remain in long-term remission with the help of a bone marrow transplant, which was ready to be performed at the Gorbacheva Research Institute of Haematology and Transplantolgy in St. Petersburg.
A fully compatible bone marrow donor for Irina was found in the International Registry in June 2022. The transplantation surgery took place in St. Petersburg in early September. Hilfeverein AdVita transferred 17,257 euros to the International Morsch Registry to fully cover the search and activation of a bone marrow donor for Irina.
At the end of November 2022, Irina's health allowed doctors to discharge her from the hospital to her place of residence, in the Penza Region under medical supervision. Before being discharged home, Irina felt well, celebrated her first victory - the doctors allowed her to eat an apple!
Scheduled examinations at the Gorbacheva medical center take place every six months.
Daniil Bushkovskiy
Daniil is 24 years old, he lives in a small Siberian village in Tomsk Region.
The young man is a bright student, he reads a lot, learns to play guitar. He has graduated from secondary school with very good notes. Life could be happy, but unfortunately Daniil has a rear and life threatening diagnose – primary immune deficiency, chronic granulomatous disease (CGD).
From early childhood the boy suffered from purulent inflammations, constant pain in the stomach, later also lungs were affected. The child was unsuccessfully treated for various alleged diseases and only at the age of 17 he was correctly diagnosed at the Dmitriy Rogachev Medical Center in Moscow. This made it possible to prescribe adequate therapy, but it only helps to cope with the consequences without eliminating the cause.
CGD is a genetic disease that causes primary immunodeficiency. Bone marrow transplantation is an effective, and sometimes the only way to combat the disease, it allows to radically change the quality of life of the patient.
Daniil needs a bone marrow transplant. The St. Petersburg-based R.M. Gorbacheva Research Institute of Pediatric Oncology, Hematology and Transplantology has agreed to perform the transplant. The problem is that Danya has a compatible donor only abroad. It is necessary to pay the German registry named after S. Morsch, 14500 euros for donor activation and stem cells collection in 120 thousand rubles for transplant delivery to St. Petersburg.
With your donations we can help Daniil.
The young man is a bright student, he reads a lot, learns to play guitar. He has graduated from secondary school with very good notes. Life could be happy, but unfortunately Daniil has a rear and life threatening diagnose – primary immune deficiency, chronic granulomatous disease (CGD).
From early childhood the boy suffered from purulent inflammations, constant pain in the stomach, later also lungs were affected. The child was unsuccessfully treated for various alleged diseases and only at the age of 17 he was correctly diagnosed at the Dmitriy Rogachev Medical Center in Moscow. This made it possible to prescribe adequate therapy, but it only helps to cope with the consequences without eliminating the cause.
CGD is a genetic disease that causes primary immunodeficiency. Bone marrow transplantation is an effective, and sometimes the only way to combat the disease, it allows to radically change the quality of life of the patient.
Daniil needs a bone marrow transplant. The St. Petersburg-based R.M. Gorbacheva Research Institute of Pediatric Oncology, Hematology and Transplantology has agreed to perform the transplant. The problem is that Danya has a compatible donor only abroad. It is necessary to pay the German registry named after S. Morsch, 14500 euros for donor activation and stem cells collection in 120 thousand rubles for transplant delivery to St. Petersburg.
With your donations we can help Daniil.
18.10.2021
The results of bone marrow transplantation are stable. Danya feels well. Hilfeverein AdVita continues to raise funds for the treatment of patients of the Raisa Gorbacheva Cancer Center.
14.07.2020
Daniil is doing great. Not that long ago, he took a blood test in Tomsk, his blood counts are normal. Daniil has also developed skin GVHD and is still taking Tacrolimus. The first stage of vaccination is completed and is to be continued in January. His medical exam is planned in a year.
22.04.2020
Daniil's blood counts are normal, although his liver counts are increased. Tacrolimus doses had to be increased to cope with his liver GVHD. Daniil has not been able to gain weight yet. In general he is well getting vaccinated for the first time on March 18, after which he was feverish for a few days.
14.02.2020
In early February, Daniel came to St. Petersburg for a medical examination. His Hemoglobin levels are low, but other blood counts are normal. The blood test result for engraftment of the donor bone marrow is not ready yet. His lungs tests seem to be normal. He continues low dosage Tacrolimus treatment and was prescribed iron supplements. Soon Daniil will go home, his next medical exam will take place in six months. Daniel feels OK and is making plans to continue his studies.
18.12.2019
Daniil is well and is now back home. His hemoglobin levels are a bit low, though other blood counts are close to normal. Daniel continues to take Tacrolimus. A medical appointment is scheduled in St. Petersburg for February 2020. Daniel goes for walks, spends time at home while also preparing documents to reapply for disability benefits.
29.11.2019
The blood test results show that complete engraftment of the donor bone marrow remains. Blood counts are close to normal and there are no viruses detected. Skin GHVD does not bother Daniil, although he keeps taking Tacrolimus. Daniel is soon to be released and on December 6th he returns home. Daniel is well, goes for walks and is in physical therapy. He has managed to gain some weight.
12.11.2019
Daniel's blood test showed complete engraftment of the donor bone marrow. Blood counts are close to normal. The young man was transferred to the day hospital of Raisa Gorbacheva Institute of Pediatric Oncology. He recently developed a skin rash and is to have a dermatologist consultation. Daniil keeps taking Tacrolimus. Daniil feels rather well and is more energetic. The young man goes for walks and spends time on his computer.
22.10.2019
In early October, Daniil had a fever and was later diagnosed with a catheter infection and cervical lymph node caused by Pseudomonas aeruginosa. Daniil was transferred to an intensive care unit where they surgically removed the abscess. Mid-October, after the necessary treatment Daniil returned to the transplantation unit. The blood test taken 30 days after the surgery showed complete engraftment of the donor bone marrow. His blood counts are close to normal now, so he will be transferred to a day hospital soon.
Daniil is well, although a bit weak. He is allowed for walks and is doing physical therapy. In his free time, he learns card tricks.
01.10.2019
On September 18th, Daniil had a bone marrow transplant. After the surgery, he kept experiencing seizures and had to take anti-seizure medication. Three days after the transplant, he was taken to a transplant unit. His blood counts are low, for which is getting blood transfusion. Unfortunately, Daniil has also developed mucositis.
During the preparation period, Daniil was successfully treated for furunculosis, but has been suffering from a high fever in the last 5 days. Doctors believe that the fever might have been caused by an infection. At the moment, Danill is very weak and is not feeling well. He might need further treatment.
The search for a bone marrow transplant donor and stem cell matching were fully covered by our donors. We are grateful for the generous donations!
11.09.2019
On September 9th, Daniil was admitted to the intensive care unit of Raisa Gorbacheva Institute of Pediatric Oncology due to a possible acute reaction to the upcoming pre-transplantation chemotherapy. His transplantation is scheduled for September 18th.
Lately, Daniil has been suffering from furunculosis and an eye inflammation and was diagnosed with staphylococcus. From time to time, Daniil is experiencing high fever, although his general condition is stable and his appetite is increasing.
23.08.2019
Daniil is undergoing a medical examination in Tomsk prior to the surgery. His blood values are stable, ESR is high. Daniil is still suffering from furunculosis and decreased appetite.
Tomorrow Daniil is returning home to go to St. Petersburg at the end of August for medical advice. Daniil's not feeling well because of
a high fever and furunculosis.
The results of bone marrow transplantation are stable. Danya feels well. Hilfeverein AdVita continues to raise funds for the treatment of patients of the Raisa Gorbacheva Cancer Center.
14.07.2020
Daniil is doing great. Not that long ago, he took a blood test in Tomsk, his blood counts are normal. Daniil has also developed skin GVHD and is still taking Tacrolimus. The first stage of vaccination is completed and is to be continued in January. His medical exam is planned in a year.
22.04.2020
Daniil's blood counts are normal, although his liver counts are increased. Tacrolimus doses had to be increased to cope with his liver GVHD. Daniil has not been able to gain weight yet. In general he is well getting vaccinated for the first time on March 18, after which he was feverish for a few days.
14.02.2020
In early February, Daniel came to St. Petersburg for a medical examination. His Hemoglobin levels are low, but other blood counts are normal. The blood test result for engraftment of the donor bone marrow is not ready yet. His lungs tests seem to be normal. He continues low dosage Tacrolimus treatment and was prescribed iron supplements. Soon Daniil will go home, his next medical exam will take place in six months. Daniel feels OK and is making plans to continue his studies.
18.12.2019
Daniil is well and is now back home. His hemoglobin levels are a bit low, though other blood counts are close to normal. Daniel continues to take Tacrolimus. A medical appointment is scheduled in St. Petersburg for February 2020. Daniel goes for walks, spends time at home while also preparing documents to reapply for disability benefits.
29.11.2019
The blood test results show that complete engraftment of the donor bone marrow remains. Blood counts are close to normal and there are no viruses detected. Skin GHVD does not bother Daniil, although he keeps taking Tacrolimus. Daniel is soon to be released and on December 6th he returns home. Daniel is well, goes for walks and is in physical therapy. He has managed to gain some weight.
12.11.2019
Daniel's blood test showed complete engraftment of the donor bone marrow. Blood counts are close to normal. The young man was transferred to the day hospital of Raisa Gorbacheva Institute of Pediatric Oncology. He recently developed a skin rash and is to have a dermatologist consultation. Daniil keeps taking Tacrolimus. Daniil feels rather well and is more energetic. The young man goes for walks and spends time on his computer.
22.10.2019
In early October, Daniil had a fever and was later diagnosed with a catheter infection and cervical lymph node caused by Pseudomonas aeruginosa. Daniil was transferred to an intensive care unit where they surgically removed the abscess. Mid-October, after the necessary treatment Daniil returned to the transplantation unit. The blood test taken 30 days after the surgery showed complete engraftment of the donor bone marrow. His blood counts are close to normal now, so he will be transferred to a day hospital soon.
Daniil is well, although a bit weak. He is allowed for walks and is doing physical therapy. In his free time, he learns card tricks.
01.10.2019
On September 18th, Daniil had a bone marrow transplant. After the surgery, he kept experiencing seizures and had to take anti-seizure medication. Three days after the transplant, he was taken to a transplant unit. His blood counts are low, for which is getting blood transfusion. Unfortunately, Daniil has also developed mucositis.
During the preparation period, Daniil was successfully treated for furunculosis, but has been suffering from a high fever in the last 5 days. Doctors believe that the fever might have been caused by an infection. At the moment, Danill is very weak and is not feeling well. He might need further treatment.
The search for a bone marrow transplant donor and stem cell matching were fully covered by our donors. We are grateful for the generous donations!
11.09.2019
On September 9th, Daniil was admitted to the intensive care unit of Raisa Gorbacheva Institute of Pediatric Oncology due to a possible acute reaction to the upcoming pre-transplantation chemotherapy. His transplantation is scheduled for September 18th.
Lately, Daniil has been suffering from furunculosis and an eye inflammation and was diagnosed with staphylococcus. From time to time, Daniil is experiencing high fever, although his general condition is stable and his appetite is increasing.
23.08.2019
Daniil is undergoing a medical examination in Tomsk prior to the surgery. His blood values are stable, ESR is high. Daniil is still suffering from furunculosis and decreased appetite.
Tomorrow Daniil is returning home to go to St. Petersburg at the end of August for medical advice. Daniil's not feeling well because of
a high fever and furunculosis.
Lilya Znayeva
Lilya Znayeva, 35, lives in Irkutsk. After graduation she worked in the Federal Bailiffs Service and as a lawyer. Lilya is married and has two sons.
Before the illness, Lilya had an interesting and active life — vacations on the Baikal Lake, hiking and kayaking. Julia made big plans, but the diagnosis of acute lymphoblastic leukemia, made in the Summer of 2017, changed her whole life: eight months in the hematology department, six courses of chemotherapy, then three supporting courses. And in June 2018 — a new relapse and endless exhausting treatment. It became clear that the only way out was a bone marrow transplantation.
In July 2019 a bone marrow transplantation was successfully performed. Julia is feeling well and she is busy raising her two children. Hilfeverein AdVita goes on with raising funds for the patients of the Raissa Gorbacheva Cancer Center
Before the illness, Lilya had an interesting and active life — vacations on the Baikal Lake, hiking and kayaking. Julia made big plans, but the diagnosis of acute lymphoblastic leukemia, made in the Summer of 2017, changed her whole life: eight months in the hematology department, six courses of chemotherapy, then three supporting courses. And in June 2018 — a new relapse and endless exhausting treatment. It became clear that the only way out was a bone marrow transplantation.
In July 2019 a bone marrow transplantation was successfully performed. Julia is feeling well and she is busy raising her two children. Hilfeverein AdVita goes on with raising funds for the patients of the Raissa Gorbacheva Cancer Center
18.10.2021
The remission after the bone marrow transplantation is keeping. Julya is feeling well. Hilfeverein AdVita continues to raise funds for the patients of Raissa Gorbacheva Cancer Center.
29.04.2020
At the end of February, Lilya came to St. Petersburg for a medical exam. Her blood counts are normal. Remission and engraftment of the donor bone marrow remain, which was confirmed by the puncture taken in early March and on April 9 in Irkutsk. Lilia isolated herself in the village with children, keeping herself busy. She shows her children different outdoor games that she used to play as a child herself.
31.01.2020
On November 24, Lilia went to St. Petersburg for a check-up: remission remains and her blood counts are stable. Sirolimus treatment is over and Liliya was allowed to go home until February. She is well, busy with her apartment renovations and taking care of the children.
22.11.2019
November 19th, results of Lilya's biopsy show that remission remains. Her platelet count is low, while other blood counts are close to normal. So far, the state failed to provide Sirolimus for Liliya. November 24th, she will go to St. Petersburg for a check-up.
Liliya is well, she plays with her children and reads books to them. Not long ago, she was re-registered as disabled (first-degree).
24.10.19
Lilya's blood counts are increasing. She is taking Sirolimus, Imatinib and other medications. Her follow-up examination is scheduled for November 25th. Meanwhile, Lilya has to reapply for disability benefits. She is feeling better and at the moment at home with her children.
03.10.19
In the middle of September, Lilya had a bone marrow biopsy that showed full engraftment of the bone marrow transplant. Lilya's blood blast count is within the norm and although her blood counts are lower than usual, there is no need in blood transfusion. Lilya was discharged from the hospital, the follow-up checkup is scheduled for early December. Lilya is well and is already back home, happily reunited with her kids.
09.09.2019
Marrow biopsy in August has shown successful transplant bone marrow engraftment. CMV disease and herpes are no longer an issue, but Lilya is still struggling with low blood counts and thus requires a blood transfusion. Lilya is also through with her Valcyte treatment. Lilya is doing well and is allowed for walks, but can't wait to finally go home.
The remission after the bone marrow transplantation is keeping. Julya is feeling well. Hilfeverein AdVita continues to raise funds for the patients of Raissa Gorbacheva Cancer Center.
29.04.2020
At the end of February, Lilya came to St. Petersburg for a medical exam. Her blood counts are normal. Remission and engraftment of the donor bone marrow remain, which was confirmed by the puncture taken in early March and on April 9 in Irkutsk. Lilia isolated herself in the village with children, keeping herself busy. She shows her children different outdoor games that she used to play as a child herself.
31.01.2020
On November 24, Lilia went to St. Petersburg for a check-up: remission remains and her blood counts are stable. Sirolimus treatment is over and Liliya was allowed to go home until February. She is well, busy with her apartment renovations and taking care of the children.
22.11.2019
November 19th, results of Lilya's biopsy show that remission remains. Her platelet count is low, while other blood counts are close to normal. So far, the state failed to provide Sirolimus for Liliya. November 24th, she will go to St. Petersburg for a check-up.
Liliya is well, she plays with her children and reads books to them. Not long ago, she was re-registered as disabled (first-degree).
24.10.19
Lilya's blood counts are increasing. She is taking Sirolimus, Imatinib and other medications. Her follow-up examination is scheduled for November 25th. Meanwhile, Lilya has to reapply for disability benefits. She is feeling better and at the moment at home with her children.
03.10.19
In the middle of September, Lilya had a bone marrow biopsy that showed full engraftment of the bone marrow transplant. Lilya's blood blast count is within the norm and although her blood counts are lower than usual, there is no need in blood transfusion. Lilya was discharged from the hospital, the follow-up checkup is scheduled for early December. Lilya is well and is already back home, happily reunited with her kids.
09.09.2019
Marrow biopsy in August has shown successful transplant bone marrow engraftment. CMV disease and herpes are no longer an issue, but Lilya is still struggling with low blood counts and thus requires a blood transfusion. Lilya is also through with her Valcyte treatment. Lilya is doing well and is allowed for walks, but can't wait to finally go home.
Julia Mysova
Julia Mysova lives in Satka in Chelyabinsk Region. Thirty two years old, Julia is married with three children. In March 2017, she was diagnosed with acute monoblastic leukemia.
Julia underwent chemotherapy twice during her last pregnancy. Luckily, her baby was born healthy, and Julia is currently in remission. The doctors at the Raisa Gorbacheva Research Center in St. Petersburg are convinced, however, that the risk of a recurrence is quite high without a bone marrow transplant.
The search for a bone marrow donor in Russia proved fruitless. It took a huge effort, but Julia's family and friends raised the 6,000 euros required to launch a search for a compatible donor in the international registry. Since the total cost of the search, is 18,000 euros, however, Julia's family will need help from concerned outsiders. Their income is too low.
Julia dreams of living a long life with her loved ones and raising her children.
"Any help you can give me is a chance I will get well. I thank everyone who has shown their concern for me" she writes.
Julia underwent chemotherapy twice during her last pregnancy. Luckily, her baby was born healthy, and Julia is currently in remission. The doctors at the Raisa Gorbacheva Research Center in St. Petersburg are convinced, however, that the risk of a recurrence is quite high without a bone marrow transplant.
The search for a bone marrow donor in Russia proved fruitless. It took a huge effort, but Julia's family and friends raised the 6,000 euros required to launch a search for a compatible donor in the international registry. Since the total cost of the search, is 18,000 euros, however, Julia's family will need help from concerned outsiders. Their income is too low.
Julia dreams of living a long life with her loved ones and raising her children.
"Any help you can give me is a chance I will get well. I thank everyone who has shown their concern for me" she writes.
18.10.21
The treatment is going on. We are waiting for the decision regarding bone marrow transplantation. We'll keep you posted on the results as soon as we get them from our partner organisation in St. Petersburg: https://advita.ru/podopechnye/YMys1
26.03.2020
Julia's tests showed relapse. The second course of chemotherapy is now completed, as remission was not achieved after the first course. A puncture is scheduled for next week. Based on the results, the future treatment will be updated.
02.10.2019
In October, Yulia is going to Chelyabinsk for a medical follow-up checkup. Her blood counts are slightly lower than usual. For now, it was decided against a bone marrow transplant given some of physiological factors and the fact that Yulia has been in remission for quite some time. Yullia had an URTI for two weeks and was getting treatment for that. She is feeling better, but feels quite weak and experiences some sleeping difficulties. She is busy with household chores and takes care of the kids.
20.08.2019
Julia feels quite well, she is only bothered by general weakness. Her blood counts are a little low. The control test will take place in Chelyabinsk at the beginning of October. Julia is now at home and will soon go to the village with her children.
The treatment is going on. We are waiting for the decision regarding bone marrow transplantation. We'll keep you posted on the results as soon as we get them from our partner organisation in St. Petersburg: https://advita.ru/podopechnye/YMys1
26.03.2020
Julia's tests showed relapse. The second course of chemotherapy is now completed, as remission was not achieved after the first course. A puncture is scheduled for next week. Based on the results, the future treatment will be updated.
02.10.2019
In October, Yulia is going to Chelyabinsk for a medical follow-up checkup. Her blood counts are slightly lower than usual. For now, it was decided against a bone marrow transplant given some of physiological factors and the fact that Yulia has been in remission for quite some time. Yullia had an URTI for two weeks and was getting treatment for that. She is feeling better, but feels quite weak and experiences some sleeping difficulties. She is busy with household chores and takes care of the kids.
20.08.2019
Julia feels quite well, she is only bothered by general weakness. Her blood counts are a little low. The control test will take place in Chelyabinsk at the beginning of October. Julia is now at home and will soon go to the village with her children.
Mikhail Dugin
Mikhail Dugin, 34, lives in Volzhsky in Volgograd Region. It was a real shock to Mikhail when he was diagnosed with acute lymphoblastic leukemia. His life changed dramatically. Mikhail did not give up, however, and his disease soon went into remission.
In 2018, the illness returned. Mikhail's doctors at the Raisa Gorbachev Memorial Research Institute said he had to undergo a bone marrow transplant. No compatible donor was found in the nationwide Russian database.
A search for a donor in the international registry costed 18,000 Euro.
In May 2019 a bone marrow transplantation was successfully performed
In 2018, the illness returned. Mikhail's doctors at the Raisa Gorbachev Memorial Research Institute said he had to undergo a bone marrow transplant. No compatible donor was found in the nationwide Russian database.
A search for a donor in the international registry costed 18,000 Euro.
In May 2019 a bone marrow transplantation was successfully performed
18.10.21
The remission is keeping on. Blood counts are normal. We continue to raise funds for the patients of Raissa Gorbacheva Cancer Center
22.10.2019
Once a week, Mikhail has to take blood tests at his local hospital. His blood counts are normal. The follow-up check-up is planned for the end of January 2020. Mikhail is well and spends time with his friends.
02.10.2019
Mikhail is doing well. At the end of September, he had a follow-up checkup at the Raisa Gorbacheva Institute of Pediatric Oncology and the puncture showed full engraftment of bone marrow transplant. His blood counts are normal.
Starting October 4th, Mikhail is going to be receiving outpatient care. Mikhail has a friend in St. Petersburg that he regularly talks to, and at the end of the week he is hoping to be able to fly home.
06.09.2019
Michael is currently recovering at home. Once a week, he has to take a blood test — his blood counts are stable. The follow-up exam is postponed till the end of the month. Sirolimus treatment is completed. Michael is doing well and goes for walks in the evenings when it is not too hot.
16.08.2019
Mikhail feels pretty good. His blood counts continue to rise. On August 23rd, Michail will stop taking Syrolimus as planned. He is at home, keeps in touch with his friends, goes for a walk and, if possible, goes to the countryside.
26.07.2019
Mikhail was discharged today. According to the results of the July puncture, he is still in remission, and the donor's bone marrow works well. Although his blood count is rising, it is still below the norm. The dosage of Sirolimus has been reduced, and soon the drug will be canceled. Mikhail has recovered from the cytomegalovirus infection. He feels okay and plans to go home. In one and a half months, he has to return to St. Petersburg for the follow-upexamination.
05.07.2019
In June, Mikhail was referred to a day clinic; on July 3, he had a control puncture, the results are not yet ready. According to the results of the last puncture, the donor bone marrow has taken completely. The Rh factor was replaced by a donor Rh, and blood counts are rather low, possibly because of the long-term treatment of cytomegalovirus infection. Mikhail continues to take Sirolimus, and Valcyte was recently canceled.
He feels rather well, only complains about weakness.
10.06.2019
Mikhail is feeling pretty good. The puncture a week ago showed remission, the minimal residual disease is not identified, and the result of the bone marrow engraftment test isn't ready yet.
The platelets are low and do not grow; other blood counts are close to normal. Doctors suggested that platelets do not grow not only because of cytomegalovirus infection (treatment with Cymevene continues), but also because of the toxicity of the immunosuppressive medication, therefore, Tacrolimus was recently replaced by Sirolimus.
Mikhail feels rather well, he tolerates the heat normally — he is used to Southern climate.
20.05.2019
On April 10th, Mikhail underwent bone marrow transplantation; on May 6th, he was referred to a day hospital. According to the results of puncture, the donor bone marrow has taken and it works. Recently Mikhail has been infected with cytomegalovirus, and appropriate treatment is being carried out now. Due to this infection, his recently normalized blood readings decreased. Misha is not feeling very well, he complains about his weakness.
The remission is keeping on. Blood counts are normal. We continue to raise funds for the patients of Raissa Gorbacheva Cancer Center
22.10.2019
Once a week, Mikhail has to take blood tests at his local hospital. His blood counts are normal. The follow-up check-up is planned for the end of January 2020. Mikhail is well and spends time with his friends.
02.10.2019
Mikhail is doing well. At the end of September, he had a follow-up checkup at the Raisa Gorbacheva Institute of Pediatric Oncology and the puncture showed full engraftment of bone marrow transplant. His blood counts are normal.
Starting October 4th, Mikhail is going to be receiving outpatient care. Mikhail has a friend in St. Petersburg that he regularly talks to, and at the end of the week he is hoping to be able to fly home.
06.09.2019
Michael is currently recovering at home. Once a week, he has to take a blood test — his blood counts are stable. The follow-up exam is postponed till the end of the month. Sirolimus treatment is completed. Michael is doing well and goes for walks in the evenings when it is not too hot.
16.08.2019
Mikhail feels pretty good. His blood counts continue to rise. On August 23rd, Michail will stop taking Syrolimus as planned. He is at home, keeps in touch with his friends, goes for a walk and, if possible, goes to the countryside.
26.07.2019
Mikhail was discharged today. According to the results of the July puncture, he is still in remission, and the donor's bone marrow works well. Although his blood count is rising, it is still below the norm. The dosage of Sirolimus has been reduced, and soon the drug will be canceled. Mikhail has recovered from the cytomegalovirus infection. He feels okay and plans to go home. In one and a half months, he has to return to St. Petersburg for the follow-upexamination.
05.07.2019
In June, Mikhail was referred to a day clinic; on July 3, he had a control puncture, the results are not yet ready. According to the results of the last puncture, the donor bone marrow has taken completely. The Rh factor was replaced by a donor Rh, and blood counts are rather low, possibly because of the long-term treatment of cytomegalovirus infection. Mikhail continues to take Sirolimus, and Valcyte was recently canceled.
He feels rather well, only complains about weakness.
10.06.2019
Mikhail is feeling pretty good. The puncture a week ago showed remission, the minimal residual disease is not identified, and the result of the bone marrow engraftment test isn't ready yet.
The platelets are low and do not grow; other blood counts are close to normal. Doctors suggested that platelets do not grow not only because of cytomegalovirus infection (treatment with Cymevene continues), but also because of the toxicity of the immunosuppressive medication, therefore, Tacrolimus was recently replaced by Sirolimus.
Mikhail feels rather well, he tolerates the heat normally — he is used to Southern climate.
20.05.2019
On April 10th, Mikhail underwent bone marrow transplantation; on May 6th, he was referred to a day hospital. According to the results of puncture, the donor bone marrow has taken and it works. Recently Mikhail has been infected with cytomegalovirus, and appropriate treatment is being carried out now. Due to this infection, his recently normalized blood readings decreased. Misha is not feeling very well, he complains about his weakness.
Mikhail Volkodav
Unfortunately, Mikhail died 25.08.2019 in the Intensive Care Unit. After the first transplantation, the bone marrow did not take, and the second operation Mikhail did not endure. We express our sincere sympathy to his relatives and friends.
_______________________
Mikhail Volkodav is 24 years old. He lives in the small town of Shakhty in Rostov Region in the South of Russia. In February 2017, Mikhail was diagnosed with leukemia at the Raisa Gorbacheva Oncology Center.
Bone marrow transplantation is the only effective treatment in such cases. Unfortunately, no compatible donors were found in Russia. It costs 18,000 euros to find potential donors abroad.
Mikhail's parents are elderly, and the family does not have the means to raise such a large sum of money. Nevertheless, relatives managed to find 6,000 euros for the first payment to the Stefan Morsch Registry in Germany.
Mikhail wants to get over his illness and return to a normal life.
_______________________
Mikhail Volkodav is 24 years old. He lives in the small town of Shakhty in Rostov Region in the South of Russia. In February 2017, Mikhail was diagnosed with leukemia at the Raisa Gorbacheva Oncology Center.
Bone marrow transplantation is the only effective treatment in such cases. Unfortunately, no compatible donors were found in Russia. It costs 18,000 euros to find potential donors abroad.
Mikhail's parents are elderly, and the family does not have the means to raise such a large sum of money. Nevertheless, relatives managed to find 6,000 euros for the first payment to the Stefan Morsch Registry in Germany.
Mikhail wants to get over his illness and return to a normal life.
16.08.2019
On August 12, Mikhail was transferred to the intensive care unit of the Raisa Gorbacheva Research Institute in critical condition: the infection caused pulmonary edema. Mikhail is now connected to an IVL machine, in an induced coma. The results of the bronchoscopy are not yet ready.
26.07.2019
Mikhail was hospitalized at the Raisa Gorbacheva Research Institute. On July 24, he underwent a second bone marrow transplant. His blood counts are falling. Hemocomponent transfusions are being performed. Mikhail feels rather well, although he experiences nausea and decreased appetite. When he has a moment, he reads and watches movies. Tepadin bills were paid in time — we heartily thank the donors who made it possible.
On August 12, Mikhail was transferred to the intensive care unit of the Raisa Gorbacheva Research Institute in critical condition: the infection caused pulmonary edema. Mikhail is now connected to an IVL machine, in an induced coma. The results of the bronchoscopy are not yet ready.
26.07.2019
Mikhail was hospitalized at the Raisa Gorbacheva Research Institute. On July 24, he underwent a second bone marrow transplant. His blood counts are falling. Hemocomponent transfusions are being performed. Mikhail feels rather well, although he experiences nausea and decreased appetite. When he has a moment, he reads and watches movies. Tepadin bills were paid in time — we heartily thank the donors who made it possible.