In 2024, one of the goals of the creation of Hilfeverein AdVita in 2018 became especially relevant, namely, support for patients of the AdVita Fund (St. Petersburg) and the Children's Hospital Fund (Moscow), primarily in raising funds in Europe in euros. Back then, it was convenient to avoid double conversions, but now in 2024 it has become technically impossible to make a transfer from Russia and pay the bill of a European clinic. We had several such stories in 2024.
For example, we pay an annual fee for the participation of the Raisa Gorbacheva Research Institute of Children's Oncology, Hematology and Transplantology in the World Bone Marrow Donor Association WMDA (Leiden, Netherlands). This global donor database has existed since 1988 and coordinates data collection around the world. Only participation in it allows to search for donors in the international registries.
There were also several personal stories. For example, the story of
Nina Anisimova from Cheboksary. Back in 2020, Nina was diagnosed with aplastic anemia, she required constant blood transfusions, but in order to finally solve the problem, a council of doctors from the R. Gorbacheva Institute recommended a bone marrow transplant. The donor was found in the Russian registry, but at the time of the transplant, Nina's donor was abroad, and the procedure for his examination and cell procurement was performed at the National Scientific Oncology Center of Kazakhstan. The transplant was successfully carried out in April 2023. Due to difficulties in international financial transactions through Russian banks, it was not possible to make the payment. In December 2024, Hilfeverein AdVita paid the invoice for 1,315.11 euros for a set of medical services for the procurement of hematopoietic stem cells from the donor's peripheral blood. Now Nina is recovering at her place of residence, spending a lot of time at home with her daughters.
Another story is a story of little Oksana Oles, she is 3 years old, she lives with her parents in Nizhnevartovsk. Her “Constitutional aplastic anemia” was discovered 1.5 months after birth, when the girl’s hemoglobin dropped to critical values, then there was resuscitation, a fight for life and, as a result, blood transfusions every 3 weeks.
Constant blood transfusions increased the level of iron in the child’s body, which is why Oksana needed a bone marrow transplant as soon as possible. In November 2023, a donor was found in the international Morsch registry in Germany. The family managed to raise 23,000 euros on their own to find and activate the donor. In March 2024, a bone marrow cell transplant was performed. A month later, the final bill from the Morsch registry arrived: due to additional costs for examinations, the bill increased. It is technically impossible to send money from Russia to the international registry in Germany due to the sanctions for the Russian banks. In early March 2025, Hilfeverein AdVita paid an additional bill in the amount of 1038.70 euros.
Now the child feels better, according to her mother, Oksana has grown a little, began to eat better. Her story can be seen here:
https://www.advitaeu.com/storiesThis is only part of the stories of the past 2024. To make all this possible, we need your donations. Please support us here:
https://www.advitaeu.com/en/?form=donate .
Thanks to your support, many of our patients get a chance to recover and continue to live a happy life.